MATERNAL AND CHILD HEALTH BUREAU (MCHB)

INTERDISCIPLINARY LEADERSHIP EDUCATION IN NEURODEVELOPMENTAL AND RELATED DISABILITIES -THE LEND TRAINING PROGRAM (MCJ-069145)1995-00.  R.A. Jacobs, M.D., MPH, P.I.  Interdisciplinary leadership training program to prepare professionals to work with children with special health care needs.  This grant and mission has been a basis of program development at USC UAP since 1966.  It provides continuing core funding to conduct training, service, technical assistance, consultation, continuing education, and research activities for the purpose of preparing professionals, across all disciplines, to assume leadership in the provision of comprehensive, family-centered, culturally responsive, developmentally appropriate care of children with, or at risk for, neurodevelopmental and related disabilities and their families.

CALIFORNIA CONNECTIONS: ASSURING ACCESS TO PREVENTIVE SERVICES UNDER REFORMED SYSTEMS OF HEALTH CARE FOR CHILDREN WITH SPECIAL HEALTH CARE NEEDS (SHCN) AND THEIR FAMILIES (MCJ-06R005), 1994-00.  M. Taylor Baer, Ph.D., P.I.  This project contributes to the development of a model for an infrastructure which assures access to preventive services, integrating nutrition, oral health, mental health and family support as part of the comprehensive system of managed care.  Major activities include: 1) conducting, in collaboration with CCS, a county-based needs assessment of existing Medi-Cal Managed Care models for the purpose of informing CCS of the extent to which each facilitates access to preventive services; 2) assisting counties in forming working task forces and to develop linkages between managed care and specialty care providers and families; and 3) making recommendations for standards, protocols, educational materials and training which emphasize prevention.  Three counties in California and one county in Arizona are participating in the project.

REGION IX NUTRITION MENTORING PROJECT (MCJ-069345), 1995-00.  M. Taylor Baer, Ph.D., P.I.  Since 1985, the USC UAP has collaborated with state agencies in Arizona, California, Hawaii and Nevada to strengthen nutrition services by raising the awareness of health care planners and providers to the importance of nutrition, by trianing professionals in all disciplines to identify and refer children at nutrition risk, and to train nutritionists and dietitians to work with children in early intervention settings.  The overall goal of this collaborative project is to improve the quality of nutrition services available, expand access to nutrition services in all settings, and increase the number and quality of personnel providing nutrition and feeding services for children with, or at risk for, special health care needs in the Region IX states of Arizona, California, Hawaii, Nevada; and the Federated State of Micronesia through continuing education to build nutrition training and mentoring capacity in each.

A CISS FOR CALIFORNIA'S CHILDREN: DEVELOPING PARTNERSHIPS TO INTEGRATE SERVICES FOR CSHCN, 1997-01.  M. Taylor Baer, Ph.D., P.I., M. Gregory, M.D., Co-Director. The goal of this project is to promote access, under Medi-Cal Managed Care, to integrated and family-centered services for children with special health care needs and their families in California.

CENTER FOR OCCUPATIONAL SCIENCE-BASED LEADERSHIP TRAINING IN PEDIATRIC OCCUPATIONAL THERAPY (MCH-009048), 1997-02. D. Parham, Ph.D., OTR, P.I. The Center provides post-professional graduate training of occupational therapists for leadership roles in education, service, research, administration, and advocacy related to occupational therapy in programs providing maternal and child health services, including children with special health care needs. 

CALIFORNIA HEALTHY AND READY TO WORK (CA HRTW), 1997-01. C.L. Betz, Ph.D., RN, P.I. The CA HRTW assists adolescents with disabilities and special health care needs who are in transition from pediatric to adult health care settings and are learning to become responsible, independent and self-sufficient adults. (Effective May 1, 1998, CA HRTW became partners with USC Department of Nursing, USC University Affiliated Program at CHLA, and continues partnership with Southern California Transition Coalition.)

PARTNERS IN EXCELLENCE FOR LEADERSHIP IN MCH NUTRITION, 1998-03*.  M. Taylor Baer, Ph.D., P.I. The overall goal of the program is to develop leadership, advance scholarship and promote partnerships for the improvement of the nutritional health of mothers, children and families by enhancing the activities of UCLA's Leadership Training Program in Public Health Nutrition to create a "Center of Excellence"in MCH Nutrition as a national and regional resource.  *Subcontract with UCLA.

AN INTEGRATED MEDICAL HOME TRAINING PROGRAM FOR PROVIDERS AND FAMILIES OF CHILDREN WITH SPECIAL HEALTH CARE NEEDS IN LOS ANGELES COUNTY, 1998-02*.  K. Smith, R.N, M.N., P.I.  To improve the coordination of care for children with special health care needs and their families by establishing an integrated training program for pediatricians and their staff, care coordinators, quality assurers and parents in their respective roles in the delivery of services within medical homes. *Funded through Public Health Foundation


ADMINISTRATION ON DEVELOPMENTAL DISABILITIES (ADD)

UNIVERSITY AFFILIATED PROGRAMS CORE SUPPORT (90-DD0318), 1993-00.  R.A. Jacobs, M.D., MPH, P.I.  The Administration on Developmental Disabilities provides core funding to the USC UAP to ensure that its training, service, outreach training, technical assistance, research, and dissemination activities focus on assuring that individuals with developmental disabilities and their families participate in the design of, and have access to, culturally competent services, supports, and other assistance and opportunities that promote independence, productivity and inclusion into the community (as mandated by the Developmental Disabilities Assistance and Bill of Rights Act).

CALIFORNIA CONSORTIUM ON CULTURAL DIVERSITY AND DEVELOPMENTAL DISABILITIES - a Project of National Significance (90DN0024), 1995-00.  C. Hiranaka, M.Ed., OTR, P.I.  This project is the second Project of National Significance to be awarded to the USC UAP by the Administration on Developmental Disabilities, and is a collaborative effort with the State council on Developmental Disabilities, Protection and Advocacy, Inc. and the UCLA UAP. Goals: 1) to strengthen the cultural competence of California's developmental disabilities service system, and 2) to improve service access for people with disabilities and their families from ethnic and racial minority groups in California.  Major activities include the establishment of a Statewide Consortium on Developmental Disabilities and Cultural Competence, which will be a responsive and competent system of services for consumers and their families; and the establishment of a centralized resource center for the ongoing collection and dissemination of information, which will include an electronic databank and resource library.

SOUTHERN CALIFORNIA TRAINING PROJECT ON AGING AND DEVELOPMENTAL DISABILITIES: Meeting the Needs of a Culturally-Diverse Population, 1997-02.  C. Hiranaka, M.Ed., O.T.R., P.I.  This Training Initiative Project (TIP) will develop a training program to prepare professional staff in the provision of services for older individuals with developmental disabilities. TIP projects at other UAPs have developed many training materials and programs on aging and developmental disabilities which meet the needs of the mainstream culture. The nation, with its demographic shift toward increasing cultural diversity, and California, with a majority of the population now consisting of ethnic minority groups, requires a more specific, culturally competent approach to serve its diverse aging population with developmental disabilities. Over a five-year period, the USC UAP proposes to develop and refine existing training materials and implement training on aging and developmental disabilities which will be culturally competent for individuals from the African-American, Asian-American, and Hispanic-American cultures.

CALIFORNIA GRANTSMANSHIP PROJECT: Strengthening Organizations for Californians with Developmental Disabilities from Diverse Cultures, 1998-01.  C. Hiranaka, M.Ed., OTR, P.I.  To increase the strength of organizations for consumers with developmental disabilities from ethnic minority groups and their families through the development of grant funding sources.


U.S. DEPARTMENT OF EDUCATION

TECH FOR TOTS: ASSISTIVE TECHNOLOGY FOR eINFANTS AND YOUNG CHILDREN, 1997-00. S. Aller, Ph.D., P.I.  Tech-for-Tots (TFT) is a joint effort of the USC UAP, the Department of Special Education-CSULA, and the California Early Intervention Technical Assistance Network (CEITAN).  It is designed to develop, field test and disseminate a modular interdisciplinary curriculum training package and video tape on the use of assistive technology for infants and young children which may be used for preservice and inservice training of special and regular educators and related services personnel.


NEWLY-FUNDED GRANTS/CONTRACTS

Department of Developmental Services, "Translation of the Lanterman Act," 1999-00. B. Wheeler, Ph.D., P.I. To translate the Lanterman Act into consumer-friendly language. To be developed by organized, consumer groups throughout the state in consultation with the a statewide advisory board; to be disseminated to adult regional center clients throughout the state.

Department of Developmental Services, "Evaluation of the Direct Care Worker Wage Benefit and Training Initiative," 1999-01 .  B. Wheeler, Ph.D., P.I. Will evaluate factors contributing to staff turnover in the 4500 community care facilities in California.

State Council on Developmental Disabilities/PDF, "Project HEAL," 1999-00. A. Bissada, Psy.D., P.I. Will provide training and development of comprehensive prevention, identification, medical evaluation and mental health treatment services to child victims of crime with developmental disabilities who are regional center clients.

Kern Regional Center, "Telemedicine Feeding Clinics," 1999-00.  C. Hiranaka, M.Ed., OTR, P.I. Will develop use of telemedicine in the delivery of feeding clinic services.

Lanterman Regional Center, "Dietary Treatment for Adult Consumers," 1999-00. A. Bradford Harris, M.S., RD, P.I. To provide medical/nutritional assessments and treatment for adults with developmental disabilities.

State Council on Developmental Disabilities/PDF, "Multimedia Continuing Education Training for Physicians in California," 1998-00. S. Yacoob, MD, P.I.; C. Bujold, MPH, RD/J. Williams, PsyD, Co-P.I.'s.USC UAP, General Pediatrics Department and CHLA will collaborate with expert consultants to develop, pilot and disseminate a CME-approved CD-ROM training module for medical providers serving individuals with developmental disabilities and their families.

State Council on Developmental Disabilities/PDF, "Development of Health Care, Self Care Curriculum (HCSC) and Outreach Training," 1998-99.  C. Betz, Ph.D., R.N., P.I. Development of a video tape on health-care, self-care competencies; will teach consumers how to develop basic self-care skills, with a training curriculum.

Wellness II:  Nutrition Wellness in Residential Placement, South Central Los Angeles Regional Center, 1998-00.  C. Bujold, M.P.H.,R.D., P.I.  This project will develop a video presentation that will focus on nutrition wellness and other specialty health care services of consumers (all ages) in residential care facilities. A companion guide will be developed to reinforce the video presentation.  The target audience is service providers, regional center service coordinators and clinical teams who are not actively involved with a Registered dietitian.

"Use of Multimedia and Technology to Educate Parents about Traumatic Brain Injury," CHLA Rehabilitation Department, 1999-00.  C. Bujold, M.P.H., R.D., P.I. The USC UAP will develop an interactive CD-ROM training package, in collaboration with the CHLA Rehabilitation Department, that parents will have at their disposal 24 hours a day, and which they could take home and share with their family. This tool will be used to answer those questions that were common to families entering the rehabilitation environment, and will be in a format that can be used on the rehabilitation unit itself, at home, or in rehabilitation units across the country. The information contained in the tool will be specific enough to answer parent questions but general enough to translate to any facility desiring its use.

California Department of Health Services, Children's Medical Services, "Newborn Hearing Screening, Hearing Coordination Center for Southern California," 2000-02*.  Y. Sininger, Ph.D., P.I.  *Funded through Children's Auditory and Research Evaluation (CARE) Center, House Ear Institute.


FOUNDATIONS

*Health Foundation and Trust, CA Telehealth and Telemedicine Center, Improving Access to Health Care Services for Individuals with Developmental Disabilities in California," 1999-00. C. Bujold, M.P.H., R.D., P.I. Purpose of the project is to: a) conduct a statewide needs assessment of Telehealth and Telemedicine (TH/TM) resources serving persons with developmental disabilities in CA, b) identify state and national resources for training using "new technologies," c) identify hardware and software needs for the development of training programs, d) conduct strategic planning and identify a 5-year plan for improving access to health care services and health education to individuals with developmental disabilities, and d) submit a grant proposal to the TH/TM Center and other State/National granting agencies.

Robert Wood Johnson Foundation: California PAS Consumer Co-op Project, 1997-00.  B. Yoshioka Wheeler, Ph.D., R.N., P.I.  The USC UAP will establish and evaluate four Personal Assistance Consumer Cooperatives (Co-ops) in California.  The proposed Co-Ops are based on the premise that consumers are the experts on their service needs, that choice and control can be introduced into all service delivery environments (without jeopardizing quality or heightening risk for clients) and that this service delivery model can promote consumer-direction in IHSS recipients by providing cost-effective supportive services to members who need assistance in directing their IHSS workers. 

California Dietetic Association Foundation/Zellmer Scholarship Trust Fund: Determining Costs and Measurable Outcomes for Nutrition Services Provided to Children with Special Health Care Needs in LA County CCS Medical Treatment Units, 1998-99.  A. Bradford Harris, MS, MPH, RD, P.I.


CONTRACTS/SUBCONTRACTS

Los Angeles County, Department of Mental Health (Short-Doyle), 1997-00.  R.A. Jacobs, M.D., MPH, P.I.  Individual, family, group and community-based mental health therapy services are provided to children/adolescents five to eighteen years of age.

State of California-Department of Developmental Services: Development of a Speakers Bureau for Consumers, 1997-99.  B. Yoshioka Wheeler, Ph.D., P.I.  This project will coordinate activities to develop a Speakers Bureau for consumers to present speeches to local agencies and universities in the Los Angeles area.  These speeches are to share life experiences as a person with developmental disabilities.

University of Illinois at Chicago (sub-contract), Institute on Disability and Human Development, NIDRR Center on Emergent Disabilities, 1997-00.  C. Hiranaka, M.Ed., OTR.

DDS Wellness Project-Health Care Professional Training, 1998-00.  Plan/conduct health care professionals' training workshops in the San Gabriel/Pomona Regional Center catchment area.  C. Bujold, M.P.H., RD, P.I.


CLIENT SERVICES CONTRACTS

Community Psychological Services Contracts
Provision of developmental, psychological and mental health assessment, treatment and consultation services to Community Housing Services, PACE, USC School for Early Childhood Education, California Pediatric and Family Medical Center, Pasadena Unified School District, and Garvey School District.  Marie Kanne Poulsen, Ph.D., Psychology Director.

Group Home, Primary ICF DDH, and California Children Services (CCS).  M. Taylor Baer, Ph.D., RD., Nutrition Director.

Occupational Therapy Training/Services Contracts.  Provision of teaching services to California State University Dominguez Hills students, and therapy services to Marie's Group Home and The Jeffrey Foundation.  Chana Hiranaka, M.Ed., OTR, Occupational Therapy Director.

Communication Disorders Services Contracts.  Provision of communication disorders services to children with developmental disabilities and their families in the community. S.K. Aller, Ph.D., Communication Disorders Director.

Nutrition Services Contracts.  Provision of nutrition services to USC School of Early Childhood Education, Caring for Babies with Aids, Bixby Knolls Group Home, Primary ICF DDH, and California Children Services (CCS).  M. Taylor Baer, Ph.D., RD., Nutrition Director.

Group Home, Primary ICF DDH, and California Children Services (CCS).  M. Taylor Baer, Ph.D., RD., Nutrition Director.

Occupational Therapy Training/Services Contracts.  Provision of teaching services to California State University Dominguez Hills students, and therapy services to Marie's Group Home and The Jeffrey Foundation.  Chana Hiranaka, M.Ed., OTR, Occupational Therapy Director.

Communication Disorders Services Contracts.  Provision of communication disorders services to children with developmental disabilities and their families in the community. S.K. Aller, Ph.D., Communication Disorders Director.

Nutrition Services Contracts.  Provision of nutrition services to USC School of Early Childhood Education, Caring for Babies with Aids, Bixby Knolls Group Home, Primary ICF DDH, and California Children Services (CCS).  M. Taylor Baer, Ph.D., RD., Nutrition Director.